European Network of Fibromyalgia Associates

Statement

General

Fibromyalgia is affecting an estimated 14 million people in Europe. It has a devastating impact on those who suffer from the disease and also for those carers and families who are trying to support them. Also it imposes a large economic burdens on society and individuals.

Mission

Promote Fibromyalgia awareness by politicians, physicians, scientists and the general public on a European level

Goal

As Fibromyalgia is adopted by the European politicians by way of the accepting of the written declaration 69/2008. It is for ENFA to get the written declaration into action with as primary goal to get Fibromyalgia as a key topic in the European Health Program.

Ways to reach that goal

In order to make that happen ENFA is working in a three pronged manner.
• ENFA has to strengthen the association by way of increasing membership and to improve their internal organization.
• ENFA has to work together with sister associations in order to get a bigger voice in Europe.
• ENFA has to work together with other European umbrella associations to get more involved in the policy making process.

Activities

10-01-2010: Myopain conference
October first till October 3th the Myopain conference will be held in Toledo Spain. ENFA will folow this and discuss the outcome in their anual meeting in La Coruna of October 8th
10-08-2010: Coruna Meeting
General meeting of ENFA in A Coruna, Spain
10-09-2010: 1 European Forum of Fibromyalgia
From October 8^th till October 10^th ENFA member ACOFIFA will organize the First European Forum of Fibromyalgia in A Coruna, Spain
10-14-2010: Annual meeting F.E.S.
On October 14th the Dutch Fibromyalgia association F.E.S. wil have there annual general meeting. On that meeting they will speak about the plans for the upcoming years. Afterwards there will be a special event for the volunteers in order to thank them for there work during the year. More information can be found on the website of the Dutch fibromyalgia association after the summer holidays. This website can be found by the participants.