German Fibromyalgie union (DFV) inc. federal federation
President name: Settan Margit
Member: Medek Anita
Manger: Wamser Petra
The German Fibromyalgie Union (DFV) inc. was founded in 1996. We were the first federal federation for fibromyalgia in Germany. We have founded the first fibromyalgie groups to move affected persons on and to make them strong, so that they can assert themselves with doctors. We have begun big clarification campaigns to draw the attention of doctors to the heavy impact of the illness. By our helping, the seriousness of fibromyalgia syndrome was taken up. Also for people with fibromyalgia to receive pension we have fought and fight still.
Clarification about the possible causes and results of the pain illness, fibromyalgia syndrome. We support the research around to find perhaps a common cause. We further clear on about our member's magazine "OPTIMISTEN" in which there is a lot of individual information including, technical literature, the media of radio and television and the press. We hold symposia nationwide. We organize yearly the German Fibromyalgia Day. We have compiled in approximately 2-year work with 12 medical fields the S3 guidelines. (This is the highest guideline for doctors and health insurance). In the guideline it was recognised that Fibromyalgia is a pain illness.
Achievements, Activities and Events:
|Fibromalgie day||Clarification, information||yearly||all over the country|
|Symposia||Clarification, information||3-5 yearly||Medical centres|
|Groups speaker trainings||Togetherness promote||IN 2003||Seckach|
|Television appearances||Announcement, clarification|
|Fibromyalgia 1. European world day in 2008||Abolition of the consciousness in the European level||On the 7th May 08||Brussels, Belgium|
|Press conference||Consciousness increase||12th June||Paris / France|
|Fibromyalgie day||Clarification||03rd May||Potsdam / Germany|
|Groups speaker training||Public relations||11th-13th of July||Barsinghausen/Germany|
|Media||Big campaign||Summer, 2008 to?||Germany|
|Symposia / groups speaker trainings||Together with affected persons our purposes move / public relations||Summer, 2008 to?||Germany|
|Doctors and health insurance schemes||Conviction work to health insurance scheme achievements||Summer, 2008 to?||Germany|
Expectations from the Network
We think it is very important to have a common European platform, where we can assemble all of our resources, and together influence the European Parliament. We also feel that it is important to find new ways of collaboration in order to increase the research on fibromyalgia. With a common website ENFA can present the knowledge of all of its member associations, which will help us in our future work.