Italy

 

AISF-ONLUS     Associazione Italiana Sindrome Fibromialica

Street: Via G.B.Grassi 74
District: Milan
Country: Italy
Tel: +390239043451
Fax: +390239043454
E-Mail: vicepresidenza@sindromefibromialgica.it
Website: www.sindromefibromialgica.it

 

Board members:

 

President: Piercarlo Sarzi Puttini; piercarlo.sarziputtini@gmail.com

Executive vice president, in charge of contacts and representative at ENFA: Egidio Riva; vicepresidenza@sindromefibromialgica.it

Scientific vice president:  Marco Cazzola

Treasurer: Antonella Luppino   tesoreria@sindromefibromialgica.it

Secretary:  AnnaMaria Beretta   segreteria@sindromefibromialgica.it

Board member: Alessandra Alciati

Board member: Alberto Batticciotto

Board member: Gianantonio Cassisi

Board member: Simonetta Panfi

Board member: Pierangelo Sgiarovello

 

History:

The Association started in 2002 and on 30/11/ 2005 it was renamed ONLUS Association. The Association is recognized as a National Association for Fibromyalgia patients, but every region in Italy has a regional association. The main objective of this organization has been, and is, to organize the patients' group in order to understand the disease and related problems and to support the patients.

Objectives:

 

  • To organize the patients in order to achieve National recognition of Fibromyalgia by the National Health Association (Ministero della Salute).
  • To support the patients in the treatment of the disease through meetings, congress and presentations, etc.

 

Achievements, Activities and Events:

Before 2008

 

Activity name Objectives Date Venue
National Congress To explain the disease and the therapy 15/03/08 Milan
Regional Congres To relate with the regional city 31/05/08 Menfi (Sicily)
Regional Congress To relate with the regional city 18/07/08 Cagliari (Sardinia)
Meeting of National Association of Rheumatic Disease To explain the disease and the therapy 04/10/08 Milan

In 2008

 

Activity name Objectives Date Venue
1st European World Fibromyalgia Day 2008 Raising awareness at the European Level 7th of May 08 Brussels, Belgium

Future activities

 

Activity name Objectives Date Venue
National Congress To explain the new therapy March 2009 Milan
Regional Congress To explain the national objective May Sicily
Regional Congress To explain the new therapy June Cagliari
Regional Congress To explain the new therapy 14/02/09 Trento
The meetings with the National Association of the patients with Rheumatic disease      
National Congress on Fibromyalgia   every year in spring time  
complete program on www.sindromefibromialgica.it   1 April 2017 Terme di Sirmione

Expectations from the Network

This is a very interesting Association that encourages relationships between different Countries and cultures and it is an opportunity to achieve the recognition of the disease by the EMEA. However, it is very important to help the patients understand and live with the disease. Finally to achieve good working relationships in order to win the battle.

 

 

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Contact

E-mail : contact@enfa-europe.eu