Sweden

 

Fibromyalgia Association of Sweden
 

 

 

 

Street: Jordhyttegatan 11

District: 413 27 Göteborg
Country: Sweden
Tel: +46 31 41 44 08
Fax: +46 31 41 44 42
E-Mail: johanna.spetz@fibromyalgi.se
Website:   http://www.fibromyalgi.se/

 

Board members:

 

President: Marie-Louise Olsson
Vice President: Elisabeth Gustavsson
Treasurer: Kajsa Dijkstra Ericsson
Assisting Secretary: Gunilla Lecoq
Member: Sigyn Björk, Susanne Yngwe, Susanne Werme ,

 

 

History:

Fibromyalgia Association of Sweden was founded on the 25th of April, 1998, on the initiative of 14 local fibromyalgia associations. The association was founded because there was a need for an organization that would focus solely on fibromyalgia. The association is continuously growing. Today we have a total of 4000 members in 48 local associations, representing all parts of the country. The first five years were tough since we did not receive any government grant, but after receiving it we could start implementing everything that had been planned.

Objectives:

The objectives for the organization are as follows:

  • That society through medical, social, and economic measures will ease the situation for people suffering from fibromyalgia.
  • To inform the medical services, employers, and others, about fibromyalgia.
  • To increase the awareness and understanding of the disease.
  • To influence political decisions which are of consequence to people with fibromyalgia.
  • To get more efficient treatment methods through increased research.

 

Achievements, Activities and Events:

Before 2008

 

Activity name Objectives Date Venue
A new website PR. To be seen and heard. To reach the relevant people with our information. 2005 test
Publishing of a medical brochure on fibromyalgia To raise the awareness of fibromyalgia from a medical point of view. Targeted to the health community.    
Publishing of a patient brochure on fibromyalgia To offer information on fibromyalgia to those who suffer from the disease, or knows someone who does.    
Publishing of a children's book about a bear suffering from fibromyalgia To help children in families with fibromyalgia to understand why their mother or father is not well. 2007  

In 2008

 

Activity name Objectives Date Venue
1st European World Fibromyalgia Day 2008 Raising awareness at the European Level 7th of May 08 Brussels, Belgium
Translation of our patient brochure into 7 different languages To make it easier for immigrants to receive our information of fibromyalgia.    
A totally new design of our member's magazine A more pleasant reading for our members. To offer more of the latest news, both locally, and globally.    

Future activities

 

Activity name Objectives Date Venue
Contact Course To teach/inform the participants of what is important when acting as a contact for those suffering from fibromyalgia. Autumn of 2008 Sweden
Informant Education To teach the participants how to inform authorities, and the public, and also how to give lectures. 2009 Sweden

Expectations from the Network

We think it is very important to have a common European platform, where we can assemble all of our resources, and together influence the European Parliament. We also feel that it is important to find new ways of collaboration in order to increase the research on fibromyalgia. With a common website ENFA can present the knowledge of all of its member associations, which will help us in our future work.

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Contact

E-mail : contact@enfa-europe.eu