Sweden SFF
Sveriges Fibromyalgiförbund SFF |
Street: Jordhyttegatan 11 Board members:
| President: Gun Alm Vice President: Marie-Louise Olsson Secretary: Britt O. Holst Vice Secretary: Kajsa Dijkstra Ericsson Treasurer: Liselotte Ivehed Vice Treasurer: Carina Hakanson Member: Britt Dolléus Member: Ann-Christine Malmsten Member: Sigyn Björk |
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History:
Fibromyalgia Association of Sweden was founded on the 25th of April, 1998, on the initiative of 14 local fibromyalgia associations. The association was founded because there was a need for an organization that would focus solely on fibromyalgia. The association is continuously growing. Today we have a total of 4 500 members in 46 local associations, representing all parts of the country, and also 10 more associations waiting to be members. The first five years were tough since we did not receive any government grant, but after receiving it we could start implementing everything that had been planned.
Objectives:
The objectives for the organization are as follows:
- That society through medical, social, and economic measures will ease the situation for people suffering from fibromyalgia.
- To inform the medical services, employers, and others, about fibromyalgia.
- To increase the awareness and understanding of the disease.
- To influence political decisions which are of consequence to people with fibromyalgia.
- To get more efficient treatment methods through increased research.
Achievements, Activities and Events:
Before 2008
| Activity name | Objectives | Date | Venue |
| A new website | PR. To be seen and heard. To reach the relevant people with our information. | 2005 | test |
| Publishing of a medical brochure on fibromyalgia | To raise the awareness of fibromyalgia from a medical point of view. Targeted to the health community. | ||
| Publishing of a patient brochure on fibromyalgia | To offer information on fibromyalgia to those who suffer from the disease, or knows someone who does. | ||
| Publishing of a children's book about a bear suffering from fibromyalgia | To help children in families with fibromyalgia to understand why their mother or father is not well. | 2007 |
In 2008
| Activity name | Objectives | Date | Venue |
| 1st European World Fibromyalgia Day 2008 | Raising awareness at the European Level | 7th of May 08 | Brussels, Belgium |
| Translation of our patient brochure into 7 different languages | To make it easier for immigrants to receive our information of fibromyalgia. | ||
| A totally new design of our member's magazine | A more pleasant reading for our members. To offer more of the latest news, both locally, and globally. |
Future activities
| Activity name | Objectives | Date | Venue |
| Contact Course | To teach/inform the participants of what is important when acting as a contact for those suffering from fibromyalgia. | Autumn of 2008 | Sweden |
| Informant Education | To teach the participants how to inform authorities, and the public, and also how to give lectures. | 2009 | Sweden |
Expectations from the Network
We think it is very important to have a common European platform, where we can assemble all of our resources, and together influence the European Parliament. We also feel that it is important to find new ways of collaboration in order to increase the research on fibromyalgia. With a common website ENFA can present the knowledge of all of its member associations, which will help us in our future work.
Activities
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10-01-2010: Myopain conference
October first till October 3th the Myopain conference will be held in Toledo Spain. ENFA will folow this and discuss the outcome in their anual meeting in La Coruna of October 8th
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10-08-2010: Coruna Meeting
General meeting of ENFA in A Coruna, Spain
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10-09-2010: 1 European Forum of Fibromyalgia
From October 8th till October 10th ENFA member ACOFIFA will organize the First European Forum of Fibromyalgia in A Coruna, Spain
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10-14-2010: Annual meeting F.E.S.
On October 14th the Dutch Fibromyalgia association F.E.S. wil have there annual general meeting. On that meeting they will speak about the plans for the upcoming years. Afterwards there will be a special event for the volunteers in order to thank them for there work during the year. More information can be found on the website of the Dutch fibromyalgia association after the summer holidays. This website can be found by the participants.