Ricardo Fonseca, President of Myos – the National Association against Fibromyalgia and Chronic Fatigue Syndrome (Portugal) and member of the board of ENFA, participated in the EPF Capacity Building Module on Empowering Leadership and Positive Governance, organised by the European Patient’s Forum, in 2019. This training lasted 6 months and two face-to-face meetings were held…
E-Book “Management of Fibromyalgia in Europe – Several countries experience” Over the 13 years of ENFA’s existence, we have heard the reports of all member organizations from our network, about their struggles on national levels.Although all reports are very similar, there is still no record at European level of these difficulties or achievements of each…
On this page you can find various activities that will take place in some European countries for the International Fibromyalgia Awareness Day.All the activities exposed here are organized by our network members.If you want to participate in one of these events, contact the corresponding association. Italy Associazione AISF ODV (Associazione Italiana Sindrome Fibromialgica) with other Associations…
Nadine Chard’Homme, President of FOCUS Fibromyalgie Belgique, shared with ENFA the news that a Royal Decree in Belgium which drastically reduced access to physiotherapy has been overturned. Please take a look at their press release below, modified for clarity in language. “We are happy to announce that, in its judgment number 245.099 dating July 4, 2019, the Council…
Earlier this year, several ENFA members attended the 22nd EULAR Annual European Conference of PARE, held in Prague, Czech Republic between April 5th and 7th, 2019. Here, ENFA Secretary Eva Deurloo, representing Fibromyalgiförbundet, Sweden, provides a summary of topics discussed during the conference. Hosted by the Czech League Against Rheumatism, the 22nd Annual European Conference…
ENFA look forward to welcoming delegates to Heraklion, Greece, for the European Network of Fibromyalgia Associations (ENFA) Annual Conference and General Assembly 2019, taking place between May 17th and 18th, 2019. Our theme for 2019 is ‘A holistic approach to the management of fibromyalgia across the life course’. The aim of the conference is to highlight…
Several ENFA members recently attended The International Congress on Controversies in Fibromyalgia, held in Vienna, Austria between March 4th and 5th, 2019. Here, ENFA member Eva Deurloo, representing Fibromyalgiförbundet, Sweden, provides a summary of topics discussed during the conference. We gathered in Vienna, Austria for ‘The International Congress on Controversies in Fibromyalgia’, a congress focusing…
ENFA Board Member, Ricardo, recently attended the first face-to-face meeting of the European Patients’ Forum Capacity Building Module 2019 on Empowering Leadership and Positive Organisational Governance. Over the next six months, Ricardo and other course members will receive six sessions of online coaching, before a second face-to-face meeting in September 2019. Here’s what Ricardo thought……
[vc_row][vc_column][vc_column_text]Please find below some achievements for ENFA, since the organisation was established in 2008. 2020: ENFA became involved in a project developing a fibromyalgia position paper/consensus document. 2020: ENFA developed a new 2025/2026 strategy encompassing holistic, person- and family-centred care across the life course. 2020: ENFA undertook a project to explore the needs and expectations of ENFA…
Details[vc_row][vc_column][vc_custom_heading text=”Statements from professionals” font_container=”tag:h3|text_align:left” use_theme_fonts=”yes”][vc_empty_space][vc_column_text]Fibromyalgia is common and an enormous clinical burden for both patients and society. It is a very complex disease with a variety of symptoms in addition to the defining symptom – chronic widespread pain. These include fatigue, non-restorative sleep, morning stiffness, irritable bowel and bladder, restless legs, depression, anxiety and…
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