The Patient Empowerment Campaign - One Year After
The Patient Empowerment Campaign is only a continuation of European Patients’ Forum’s (EPF) struggle to help patients get more control over their life, and promote understanding of patient empowerment. It is also a call for action not only among patients and health professionals, but among all stakeholders – European and local policy makers, NGOs, Civil Society Organizations, etc. The Campaign was launched in May 2015, at the conference organized after the joint initiative of the EPF and the Robert Bosch Stiftung. On that occasion, Mrs. Mateja Krzan represented ENFA and the voice of patients with fibromyalgia.
Conference conclusions emphasize what we all need to work on:
· “Education: patients can make informed decisions about their health if they are able to access all the relevant information, in an easily understandable format.
· Expertise: patients self-manage their condition every day so they have a unique expertise on healthcare which needs to be supported.
· Equality: patients need support to become equal partners with health professionals in the management of their condition.
· Experience: individual patients work with patient organizations to represent them, and channel their experience and collective voice.
· Engagement: patients need to be involved in designing more effective healthcare for all, and in research to deliver new and better treatments and services”
Final objective is an empowered patient who can:
· “Make informed choice about treatment and care
· Have a better relationship with health professionals
· Be committed to adhering to her/his own treatment
· Take more responsibility for her/his own care
· Take preventive measures and seek earlier diagnosis which reduce hospitalization and emergency visits.”
It has been a year since the EPS launched the campaign, now it is time to summarize the results and discuss further steps. All this will be done on the forthcoming roundtable that will take place on 22 June 2016.
ENFA will closely follow the event. Stay tuned for more information.