Board members:President: Søren Harboe Vice President: Sif Holst Secretary:Judy Olsen Treasurer: Merete Hornecker Members: Else Hansen, Bente Stisen, Stine Bundgaard, Berit Høgsted-Nielsen[/vc_column_text][vc_empty_space][vc_column_text]
History:President: Søren Harboe Vice President: Sif Holst Secretary:Judy Olsen Treasurer: Merete Hornecker Members: Else Hansen, Bente Stisen, Stine Bundgaard, Berit Høgsted-Nielsen[/vc_column_text][vc_empty_space][vc_column_text]
- To support, counsel and inform members, relatives and other interested parties.
- To raise awareness of fibromyalgia.
- To further the recognition of the disease as a chronic diseases.
- To support serious research.
- To co-operate with similar organizations.
- To support the fibromyalgia patients leading an active life despite the limitations the disease presents.
|Magazine fibromyalgi.dk||Information, guidance, education||1991||Membersquarterly|
|Helpline||Support-line for fibromyalgia patients, volunteer driven||1991||Copenhagen DK|
|New website www.fibromyalgi.dk||Information, guidance, promotion of interests||2004|
|Coping strategy seminars for members||How to manage the disease||2004||Copenhagen DK|
|Documentary on fibromyalgia||Information, guidance||2005|
|Fibromyalgia symposium with international scientific participants||Presentation of Research results||April 2006||Rigshospi-talet DK|
|Relaunching of website www.fibromyalgi.dk||Information, guidance, promotion of interests||2008||Copenhagen DK|
|IASP conference||Gathering infomation||August 2008||Glasgow UK|
|New documentary on fibromyalgia||Information, guidance||2009|
|Coping strategy seminars for relatives and friends of members||How to live with and support fibromyalgia patinets||2012||Copenhagen DK|
|Booklet for family of patients with fibromyalgia||To give information to families of patients with fibromyalgia||2012|
|Booklet on fibromyalgia and stress||information of coping with stress||2012|
|Booklet on fibromaylgia and pregnancy||information of coping with pregnancy as a fibromyalgia patient||20122|
|New line of leaflets produced||Information for patients with fibromyalgia||2013||Copenhagen DK|
|IEFIC Conference||Gathering information||2013||Florence ITA|
|Start of a new patient education program||How to live with the disease – networking, exchange of ideas||Jan. 2014||Copenhagen DK|
|Nordic conference||Gathering information exchange of ideas||March 2014||Gothenburg SWE|
|Renewal of the website www.fibromyalgi.dk||Information, guidance, contacts, promotion of interests||third quarter 2014|
|Coping strategy seminars for members||How to manage the disease||Monthly||Different locations nationwide|
|Coping strategy for relatives and friends of members||How to live with and support fibromyalgia patients||Monthly||Different locations nationwide|
|Training and meeting of volunteers working for VLFP||Bringing together our volunteers to share experience and to show our appreciation for their support.||Spring 2010||Belgium|
|3rd Medical Congress in association with Focus Fibromyalgie||Introduction of national brochure for general practitioners on fibromyalgia||March 2011||Leuven Belgium|