[vc_row][vc_column][vc_custom_heading text=”Asociación Coruñesa de Fibromialgia y Síndrome de Fatiga Crónica ACOFIFA ” font_container=”tag:h3|text_align:left” use_theme_fonts=”yes”][vc_empty_space][vc_row_inner][vc_column_inner width=”1/4″][vc_single_image image=”108″][/vc_column_inner][vc_column_inner width=”3/4″][vc_column_text]Street: Panaderas nº 11, bajo District: 15001 A Coruña Country: España Tel: (0034) 981206899 Mobile: (0034) 626988363 E-Mail: acofifaenfa@hotmail.com Website: www.acofifa.org Blog: http://noticiasacofifa.blogspot.com/[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_empty_space][vc_column_text]

Board members:

President name: Mrs. Maria Soledad Morales Cañás Vice President : Mr. Manuel Vázquez Cela Secretary: Ms. Maria Victoria Rodríquez Rilo Treasurer: Ms. Carmen Barrientos Mato Member coordinator Acofifa’s blog: Ms. Maria Victoria Rodriguez Rilo Member: Ms. Berta Alonso Member: Ms. Lola Martinez[/vc_column_text][vc_empty_space][vc_column_text]

History:

ACOFIFA was constituted in the Spanish town of A Coru?a on April 9th of 2.001, with the purpose to inform, raise awareness and discuss the environment of people affected by the illnesses “Fibromyalgia and Chronic Fatigue Syndrome”: ACOFIFA (Asociaci?n Coru?esa de Fibromialgia y S?ndrome de Fatiga Cr?nica). In 2004 we founded, together with two other Galician associations, the Galician Federation of Ill People with Fibromyalgia and Chronic Fatigue Syndrome: FEGAFIFA (Federaci?n Galega de Enfermos de Fibromialxia e S?ndrome de Fatiga Cr?nica). From the beginning we organized many actions, both for improving the quality of life of the people affected, and at many levels bringing political and medical pressure, promoting investigation and politic awareness.[/vc_column_text][vc_empty_space][vc_column_text]

Objectives:

• Change perception and inform publicopinion, mental health , justice system, government and society in general, about the problems of Fibromyalgia and Chronic Fatigue Syndrome and their consequences.
• Inform, advise and guide about Fibromyalgia and the Chronic Fatigue Syndrome people with fibromyalgia and their family members, in order to improve their quality of life.
• Instigate dialogue among those affected and their families, creating a network of social support in view of the widespread lack of understanding of our illnesse(s).
• Facilitate the sick people’s self-defense in situations of violition of their rights and to collaborate with them and their relatives so that they learn how to live with their illness(es).
• Stimulate and promote scientific investigation of Fibromyalgia and Chronic
• Fatigue Syndrome, from the points of view bio-psychosocial, legal andemployment in order to know their effects, accelerate the diagnosis and improve the therapeutic and rehabilitative possibilities..
• Promote and impel all kinds of actions destinated to improve the quality of life of the sick people.

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Before 2008

Activity name	Objectives	Date	Venue
World Day of Fibromyalgia and Chronic Fatigue Syndrome	Raising Awareness of the Illness, for Affected and their Families and for the General Population	Annual Each 12 May	Congress Room and on the street
Annual ENFA Reunion	Integraci?n a nivel europeo	2005	Versalles, France
Research Project: Psychopathological Indicators in Fibromyalgia	Know the psychological impact in the affected	From 2006 till now	Association
Research Project: Energy Battery in Fibromyalgia	Reduction of stress and muscle relaxation in order to ameliorate the flexibility and intensity of the tender points	From 2006 till now	Association
Service of Advice and Information	Offer solutions and alternatives for the demands and necessities of the affected ones	From 2001 till now	Association
Stimulation Workshop of the Cognitive Functions	Recuperate and stimulate cognitive functions.	From 2006 till now	Association
Thermal Treatment	Mitigate and facilitate the reduction of the physical and psychological incapacitating symptoms	From 2004 Twice a year	Thermal Installations
Group Therapy	Ameliorate quality of life of the individuals with the expression of their feelings and life experiences to the others, learning from them solutions for their diverse problems.	From 2006 till now	Association

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In 2008

Activity name	Objectives	Date	Venue
1st European World Fibromyalgia Day 2008	Raising awareness at the European Level	7th of May 08	Brussels, Belgium
Press Event during EULAR conference	Raining awareness	12th of June	Paris, France
Divulgation Conferences	Sensitize and inform the population	Many dates	Many Spanish cities
Radio Interviews and Press Articles	Augmenting the knowledge about the illness of the general population.	Many Dates	Different mass media

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Future activities

Activity name	Objectives	Date	Venue
Annual ENFA Reunion	Put in common the work of the different associations members	24th October 2008	A Coru?a, Spain
III Days of Fibromyalgia and Chronic Fatigue Syndrome	Raise awareness and spread the word about the new advances in the struggle against the illness	25th October 2008	A Coru?a, Spain
Continue the activities realized till now	raise awareness and ameliorate the quality of life of the affected	Year 2009	Association
Reunification of the Galician Associations	Reinforce the Federation	Years 2008/2009	Not specificated

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Expectations from the Network

We hope thanks to ENFA the unification of the diagnostic criterias of the illness and achieve its recognition as an illness in all the countries, applying the same IC-10 code. We also shall try to foster – via the politics of the European Parliament – the adaptation to employment of the affected, and all the activities that can be developed from the administration for improving the quality of life of the ill people and their families. We consider it is important to impel the investigation in all the possible areas in order to find the clues that will allow investigation of the causes to find the cure.[/vc_column_text][/vc_column][/vc_row]