[vc_row][vc_column][vc_custom_heading text=” Fibromyalgie en Samenleving F.E.S. Nationale vereniging Voor fibromyalgie-Patienten ” font_container=”tag:h3|text_align:left” use_theme_fonts=”yes”][vc_empty_space][vc_row_inner][vc_column_inner width=”1/4″][vc_single_image image=”75″][/vc_column_inner][vc_column_inner width=”3/4″][vc_column_text]Street: Noordse Bosje 16 District: 1211 BG Hilversum Country: Nederland Tel: +31356220612 Fax: E-Mail: fes@fesinfo.nl Website: www.fesinfo.nl[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_empty_space][vc_column_text]

Board members:

President name: Johanna Boogerd – Quaak Secretary: Janneke Knobhout Treasurer: Maarten Splinter Member: Yvette Moerdijk Member: Bram Tack Managing director; Ingeborg Audier[/vc_column_text][vc_empty_space][vc_column_text]

History:

The F.E.S. was founded in 1986 in the northern part of The Netherlands. The main reason for this was the lack of awareness for fibromyalgia. In a reasonably short period of time the association started to grow and is becoming one of the largest specific patient associations of The Netherlands. The aim of the founders, to create an association where fibromyalgia patients could tell their story and learn from each other, has succeeded. Now-a-days the organization spends time and money on; fellow-sufferer contacts , information and guidance and promotion of awareness.[/vc_column_text][vc_empty_space][vc_column_text]

Objectives:

Awareness for the causes and consequences of the rheumatic disease fibromyalgia in society. To come to that goal we have three main objectives which are split up in different areas.

• Fellow-sufferer contacts like coffee mornings or telephone contact etc.
• Information and guidance like the FES Magazine, lectures, brochures, events and the website.
• Promotion of awareness like participation in umbrella organizations, health insurance companies, other rheumatic diseases organizations, attending conferences etc.

[/vc_column_text][vc_empty_space][vc_custom_heading text=”Achievements, Activities and Events:” font_container=”tag:h3|text_align:left” use_theme_fonts=”yes”][vc_empty_space][vc_column_text]

Before 2008

Activity name	Objectives	Date	Venue
Presentation of the organizations book about fibromyalgia; “FIBROMYALGIA- Invisible pain” Information and guidance	26th October 1991	Bunnik, The Netherlands
Presentation of the total refreshed website	Information, guidance, contacts, promotion of interest	2001
International Jubilee Congress Fibromyalgia = Multidisciplinary	Raising awareness from health professionals	12th of May 2006	Veldhoven, The Netherlands
Regional Activity Day	Information, guidance and promotion of interest	3th of February 9th of June 22th of September 23th of November	Putten Assen Alphen a/d Rijn Breda, The Netherlands

[/vc_column_text][vc_empty_space][vc_column_text]

In 2008

Activity name	Objectives	Date	Venue
1st European World Fibromyalgia Day 2008	Raising awareness at the European Level	7th of May 08	Brussels, Belgium
Press Event during EULAR conference	Raining awareness	12th of June	Paris, France

[/vc_column_text][vc_empty_space][vc_column_text]

Future activities

 

Activity name	Objectives	Date	Venue
Implementation of multidisciplinary programs trough out The Netherlands for first and second line of health care	Improvement of quality of live for Fibromyalgia patients in The Netherlands	Starting 2009 till ???	The Netherlands
Symposium about awareness in The Netherlands	Raising awareness by politicians and health professionals	March 2009	Amersfoort, The Netherlands

[/vc_column_text][vc_empty_space][vc_column_text]

Expectations from the Network

From ENFA we expect a leading role of achieving awareness on the European level with politicians and health professionals. Second we expect ENFA to play a role in achieving fundamental research at European level supported by the European Union about the causes of fibromyalgia. And third we expect ENFA to support European countries who want to start their own national patient organizations.[/vc_column_text][/vc_column][/vc_row]