Mateja Kržan elected to the EPF Ethics Committee
ENFA Board Member Mateja Kržan was recently elected to the newly formed European Patients’ Forum (EPF) Ethics Committee, during the EPF 2020 Virtual Annual General Meeting. Mateja joins Amanda Bok (European Haemophilia Consortium), Anita Arsovska (Stroke Alliance for Europe), Birgit Dembski (BAG SELBSTHILFE) and Stella de Sabata (International Diabetes Federation Europe) as the five elected members of the committee…
Successful advocacy for people with fibromyalgia in Israel
ENFA member organisation, INBAR, shared with us recently some fantastic news as a result of years of advocacy in Israel, lead by Sharon Gur and their advocate Ely Lotan. People with fibromyalgia in Israel will now be eligible for a disability stipend, announced by the National Insurance Institute (NII) in November 2019. The state will recognise…