Mateja Kržan elected to the EPF Ethics Committee
ENFA Board Member Mateja Kržan was recently elected to the newly formed European Patients’ Forum (EPF) Ethics Committee, during the EPF 2020 Virtual Annual General Meeting. Mateja joins Amanda Bok (European Haemophilia Consortium), Anita Arsovska (Stroke Alliance for Europe), Birgit Dembski (BAG SELBSTHILFE) and Stella de Sabata (International Diabetes Federation Europe) as the five elected members of the committee…
Successful advocacy for people with fibromyalgia in Israel
ENFA member organisation, INBAR, shared with us recently some fantastic news as a result of years of advocacy in Israel, lead by Sharon Gur and their advocate Ely Lotan. People with fibromyalgia in Israel will now be eligible for a disability stipend, announced by the National Insurance Institute (NII) in November 2019. The state will recognise…
EPF Capacity Building Module on Empowering Leadership and Positive Governance
Ricardo Fonseca, President of Myos – the National Association against Fibromyalgia and Chronic Fatigue Syndrome (Portugal) and member of the board of ENFA, participated in the EPF Capacity Building Module on Empowering Leadership and Positive Governance, organised by the European Patient’s Forum, in 2019. This training lasted 6 months and two face-to-face meetings were held…
Victory for people with fibromyalgia in Belgium
Nadine Chard’Homme, President of FOCUS Fibromyalgie Belgique, shared with ENFA the news that a Royal Decree in Belgium which drastically reduced access to physiotherapy has been overturned. Please take a look at their press release below, modified for clarity in language. “We are happy to announce that, in its judgment number 245.099 dating July 4, 2019, the Council…
22nd EULAR Annual European Conference of PARE
Earlier this year, several ENFA members attended the 22nd EULAR Annual European Conference of PARE, held in Prague, Czech Republic between April 5th and 7th, 2019. Here, ENFA Secretary Eva Deurloo, representing Fibromyalgiförbundet, Sweden, provides a summary of topics discussed during the conference. Hosted by the Czech League Against Rheumatism, the 22nd Annual European Conference…
ENFA Annual Conference and General Assembly 2019
ENFA look forward to welcoming delegates to Heraklion, Greece, for the European Network of Fibromyalgia Associations (ENFA) Annual Conference and General Assembly 2019, taking place between May 17th and 18th, 2019. Our theme for 2019 is ‘A holistic approach to the management of fibromyalgia across the life course’. The aim of the conference is to highlight…
Fibromyalgia2019 Conference
Several ENFA members recently attended The International Congress on Controversies in Fibromyalgia, held in Vienna, Austria between March 4th and 5th, 2019. Here, ENFA member Eva Deurloo, representing Fibromyalgiförbundet, Sweden, provides a summary of topics discussed during the conference. We gathered in Vienna, Austria for ‘The International Congress on Controversies in Fibromyalgia’, a congress focusing…
EPF Capacity Building Module 2019
ENFA Board Member, Ricardo, recently attended the first face-to-face meeting of the European Patients’ Forum Capacity Building Module 2019 on Empowering Leadership and Positive Organisational Governance. Over the next six months, Ricardo and other course members will receive six sessions of online coaching, before a second face-to-face meeting in September 2019. Here’s what Ricardo thought……