Spain

Asociación Coruñesa de Fibromialgia y Síndrome de Fatiga Crónica ACOFIFA

Nr Registro: 2001/005592-1


Street: Panaderas nº 11, bajo
District: 15001 A Coruña
Country: España
Tel: (0034) 981206899
Fax: (0034) 626988363 
E-Mail: acofifaenfa@telefonica.net 
           acofib@hotmail.com
Website: www.acofifa.org
Blog: http://noticiasacofifa.blogspot.com/

Board members:

President name: Mrs. Maria Soledad Morales Cañás
Vice President : Mr. Manuel Vázquez Cela
Secretary: Ms. Carmen Elena Sánchez Garcia
Treasurer: Ms. Carmen Barrientos Mato
Member coordinator Acofifa's blog: Ms. Maria Victoria Rodriguez Rilo
Member: Ms. Berta Alonso
Member: Ms. Lola Martinez		  

 

History:

ACOFIFA was constituted in the Spanish town of A Coru?a on April 9th of 2.001, with the purpose to inform, raise awareness and discuss the environment of people affected by the illnesses "Fibromyalgia and Chronic Fatigue Syndrome": ACOFIFA (Asociaci?n Coru?esa de Fibromialgia y S?ndrome de Fatiga Cr?nica). In 2004 we founded, together with two other Galician associations, the Galician Federation of Ill People with Fibromyalgia and Chronic Fatigue Syndrome: FEGAFIFA (Federaci?n Galega de Enfermos de Fibromialxia e S?ndrome de Fatiga Cr?nica). From the beginning we organized many actions, both for improving the quality of life of the people affected, and at many levels bringing political and medical pressure, promoting investigation and politic awareness.

Objectives:

  • Change perception and inform publicopinion, mental health , justice system, government and society in general, about the problems of Fibromyalgia and Chronic Fatigue Syndrome and their consequences.
  • Inform, advise and guide about Fibromyalgia and the Chronic Fatigue Syndrome people with fibromyalgia and their family members, in order to improve their quality of life.
  • Instigate dialogue among those affected and their families, creating a network of social support in view of the widespread lack of understanding of our illnesse(s).
  • Facilitate the sick people's self-defense in situations of violition of their rights and to collaborate with them and their relatives so that they learn how to live with their illness(es).
  • Stimulate and promote scientific investigation of Fibromyalgia and Chronic Fatigue Syndrome, from the points of view bio-psychosocial, legal andemployment in order to know their effects, accelerate the diagnosis and improve the therapeutic and rehabilitative possibilities..
  • Promote and impel all kinds of actions destinated to improve the quality of life of the sick people.


Achievements, Activities and Events:

Before 2008

Activity name Objectives Date Venue
World Day of Fibromyalgia and Chronic Fatigue Syndrome Raising Awareness of the Illness, for Affected and their Families and for the General Population Annual Each 12 May Congress Room and on the street
Annual ENFA Reunion Integraci?n a nivel europeo 2005 Versalles, France
Research Project: Psychopathological Indicators in Fibromyalgia Know the psychological impact in the affected From 2006 till now Association
Research Project: Energy Battery in Fibromyalgia Reduction of stress and muscle relaxation in order to ameliorate the flexibility and intensity of the tender points From 2006 till now Association
Service of Advice and Information Offer solutions and alternatives for the demands and necessities of the affected ones From 2001 till now Association
Stimulation Workshop of the Cognitive Functions Recuperate and stimulate cognitive functions. From 2006 till now Association
Thermal Treatment Mitigate and facilitate the reduction of the physical and psychological incapacitating symptoms From 2004 Twice a year Thermal Installations
Group Therapy Ameliorate quality of life of the individuals with the expression of their feelings and life experiences to the others, learning from them solutions for their diverse problems. From 2006 till now Association

In 2008

Activity name Objectives Date Venue
1st European World Fibromyalgia Day 2008 Raising awareness at the European Level 7th of May 08 Brussels, Belgium
Press Event during EULAR conference Raining awareness 12th of June Paris, France
Divulgation Conferences Sensitize and inform the population Many dates Many Spanish cities
Radio Interviews and Press Articles Augmenting the knowledge about the illness of the general population. Many Dates Different mass media

Future activities

Activity name Objectives Date Venue
Annual ENFA Reunion Put in common the work of the different associations members 24th October 2008 A Coru?a, Spain
III Days of Fibromyalgia and Chronic Fatigue Syndrome Raise awareness and spread the word about the new advances in the struggle against the illness 25th October 2008 A Coru?a, Spain
Continue the activities realized till now raise awareness and ameliorate the quality of life of the affected Year 2009 Association
Reunification of the Galician Associations Reinforce the Federation Years 2008/2009 Not specificated

Expectations from the Network

We hope thanks to ENFA the unification of the diagnostic criterias of the illness and achieve its recognition as an illness in all the countries, applying the same IC-10 code. We also shall try to foster - via the politics of the European Parliament - the adaptation to employment of the affected, and all the activities that can be developed from the administration for improving the quality of life of the ill people and their families. We consider it is important to impel the investigation in all the possible areas in order to find the clues that will allow investigation of the causes to find the cure.

Activities