On this page you can find various activities that will take place in some European countries for the International Fibromyalgia Awareness Day.
All the activities exposed here are organized by our network members.
If you want to participate in one of these events, contact the corresponding association.
Associazione AISF ODV (Associazione Italiana Sindrome Fibromialgica) with other Associations is going to light purple color a lot of Public Buildings in many Italian main towns and villages to draw attention to FM.
And ttwo webinars will
be on Facebook on the 8th and the 15th of May.
APJOF – Associação Portuguesa de Fibromialgia, organizes a webinar whose theme is “Devaluation of Rheumatic Diseases in the context of health”.
You will be able to attend a debate between representatives of associations and health professionals on this theme and to conclude will be the public presentation of a research project that they are developing with two partner associations.
You can watch it live on APJOF’s Facebook page, on 12/05 at 20CEST.
“There are many medical events that deal with Fibromyalgia Syndrome.
But between the theory of what health professionals learn and practice, there is a central piece that does not receive due attention, but is definitive in the success of the treatment: the patient. Understanding your desires and how the proposed treatment impacts your life is essential. No one better to show the way to the health professional than the patient himself. We fibromyalgia patients must also understand that we are the protagonists of our disease, that we can and must expand the knowledge of what affects us, as this is undoubtedly the best way to adhere to treatment in a more committed and responsible way, pursuing realistic results, that medicine offers. It is in this sense that ANFIBRO and its Italian sister LIBELLULA LIBERA, supported by AISF and ENFA, joined efforts to hold the 1st INTERNATIONAL CONGRESS OF PATIENTS WITH FIBROMYALGIA.”
12 and 13 of May.
suporte@congressofibromialgia.com
On the occasion of World Fibromyalgia Day on May 12, Vlaamse Liga voor Fibromyalgie Patiënten is organizing a webinar “Fibromyalgia! What now?”
Speakers are Lieve Van Dyck and Nathalie Dornez, both VLFP contact persons and experts by experience.
May 12, 14h CEST
Platform: Teams