[vc_row][vc_column][vc_custom_heading text=” Danish Fibromyalgia Organisation” font_container=”tag:h3|text_align:left” use_theme_fonts=”yes”][vc_empty_space][vc_row_inner][vc_column_inner width=”1/4″][vc_single_image image=”48″][/vc_column_inner][vc_column_inner width=”3/4″][vc_column_text]Street: Lergravsvej 53
District: 2300 Kobenhavn
Country: Denmar
Tel: +45 3323 5560
Fax: +45 3323 5561
E-Mail:
dff@fibromyalgi.dk
Website:
www.fibromyalgi.dk[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_empty_space][vc_column_text]
Board members:
President: Søren Harboe
Vice President: Sif Holst
Secretary:Judy Olsen
Treasurer: Merete Hornecker
Members: Else Hansen, Bente Stisen, Stine Bundgaard, Berit Høgsted-Nielsen[/vc_column_text][vc_empty_space][vc_column_text]
History:
President: Søren Harboe
Vice President: Sif Holst
Secretary:Judy Olsen
Treasurer: Merete Hornecker
Members: Else Hansen, Bente Stisen, Stine Bundgaard, Berit Høgsted-Nielsen[/vc_column_text][vc_empty_space][vc_column_text]
Objectives:
- To support, counsel and inform members, relatives and other interested parties.
- To raise awareness of fibromyalgia.
- To further the recognition of the disease as a chronic diseases.
- To support serious research.
- To co-operate with similar organizations.
- To support the fibromyalgia patients leading an active life despite the limitations the disease presents.
To further the above mentioned purposes, we have gained membership of the Myopain Association, the IASP, EFIC and ENFA. We participate in international conferences and meetings.
Our aim is also to support and educate our members to maintain their connection with the flexible labour market when possible.[/vc_column_text][vc_empty_space][vc_custom_heading text=”Achievements, Activities and Events:” font_container=”tag:h3|text_align:left” use_theme_fonts=”yes”][vc_empty_space][vc_column_text]
Before 2013
| Activity name |
Objectives |
Date |
Venue |
| Magazine fibromyalgi.dk |
Information, guidance, education |
1991 |
Membersquarterly |
| Helpline |
Support-line for fibromyalgia patients, volunteer driven |
1991 |
Copenhagen DK |
| New website www.fibromyalgi.dk |
Information, guidance, promotion of interests |
2004 |
|
| Coping strategy seminars for members |
How to manage the disease |
2004 |
Copenhagen DK |
| Documentary on fibromyalgia |
Information, guidance |
2005 |
|
| Fibromyalgia symposium with international scientific participants |
Presentation of Research results |
April 2006 |
Rigshospi-talet DK |
| Relaunching of website www.fibromyalgi.dk |
Information, guidance, promotion of interests |
2008 |
Copenhagen DK |
| IASP conference |
Gathering infomation |
August 2008 |
Glasgow UK |
| New documentary on fibromyalgia |
Information, guidance |
2009 |
|
| Coping strategy seminars for relatives and friends of members |
How to live with and support fibromyalgia patinets |
2012 |
Copenhagen DK |
| Booklet for family of patients with fibromyalgia |
To give information to families of patients with fibromyalgia |
2012 |
|
| Booklet on fibromyalgia and stress |
information of coping with stress |
2012 |
|
| Booklet on fibromaylgia and pregnancy |
information of coping with pregnancy as a fibromyalgia patient |
20122 |
|
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In 2013
| Activity name |
Objectives |
Date |
Venue |
| New line of leaflets produced |
Information for patients with fibromyalgia |
2013 |
Copenhagen DK |
| IEFIC Conference |
Gathering information |
2013 |
Florence ITA |
[/vc_column_text][vc_empty_space][vc_column_text]
In 2014
| Activity name |
Objectives |
Date |
Venue |
| Start of a new patient education program |
How to live with the disease – networking, exchange of ideas |
Jan. 2014 |
Copenhagen DK |
| Nordic conference |
Gathering information exchange of ideas |
March 2014 |
Gothenburg SWE |
| Renewal of the website www.fibromyalgi.dk |
Information, guidance, contacts, promotion of interests |
third quarter 2014 |
|
| Coping strategy seminars for members |
How to manage the disease |
Monthly |
Different locations nationwide |
| Coping strategy for relatives and friends of members |
How to live with and support fibromyalgia patients |
Monthly |
Different locations nationwide |
[/vc_column_text][vc_empty_space][vc_column_text]
In 2010
| Activity name |
Objectives |
Date |
Venue |
| Training and meeting of volunteers working for VLFP |
Bringing together our volunteers to share experience and to show our appreciation for their support. |
Spring 2010 |
Belgium |
[/vc_column_text][vc_empty_space][vc_column_text]
Future activities
| Activity name |
Objectives |
Date |
Venue |
| 3rd Medical Congress in association with Focus Fibromyalgie |
Introduction of national brochure for general practitioners on fibromyalgia |
March 2011 |
Leuven Belgium |
[/vc_column_text][vc_empty_space][vc_column_text]
Expectations from the Network
Activity name Objectives Date Venue
Start of a new patient education program How to live with the disease – networking, exchange of ideas Jan. 2014 Copenhagen DK
Nordic conference Gathering information exchange of ideas March 2014 Gothenburg SWE
Renewal of the website www.fibromyalgi.dk Information, guidance, contacts, promotion of interests third quarter 2014
Coping strategy seminars for members How to manage the disease Monthly Different locations nationwide
Coping strategy for relatives and friends of members How to live with and support fibromyalgia patients Monthly Different locations nationwide[/vc_column_text][/vc_column][/vc_row]
