[vc_row][vc_column][vc_custom_heading text=”The Swedish Rheumatism Association, SRA. ” font_container=”tag:h3|text_align:left” use_theme_fonts=”yes”][vc_empty_space][vc_row_inner][vc_column_inner width=”1/3″][vc_single_image][/vc_column_inner][vc_column_inner width=”2/3″][vc_column_text]Street: Alströmergatan 39 Box 12851 District: 112 98 Stockholm Country: Sweden Tel: +46 8 505 805 00 Fax: +46 8 505 805 50 E-Mail: info@reumatikerforbundet.org Website: www.reumatikerforbundet.org[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_empty_space][vc_column_text]

Board members:

President name: Anne Carlsson First Vice President: David Magnusson Second Vice President: Bo Jonsson Member: Sara Hjalmarsson Member: Greta Thorén Member: Suzanne Ahlkvist Member: Bertil Eklund Member: Claes Stjernström Member: Margreth Halvarsson Member: Mari Norén Hedberg Member: Anna Schéle Member: Kurt Jörgensen Member: Steinar Walsö-Kanstad Member: Bo Ringertz Member: Caroline Liljegren ENFA representative:Gunilla Göran gunillagoran@hotmail.com[/vc_column_text][vc_empty_space][vc_column_text]

History:

SRA was founded in 1945 and in 1991 SRA accepted responsibility to support people with fibromyalgia in negotiations with the Swedish Neurological Association. Since that SRA has visited decision makers within the government and the parliament, the national social insurance office, the national board of health and welfare to demand better conditions for people with fibromyalgia, especially regarding health care and research. SRA has also sponsored scientific studies on health economics and have been able to show that people in Sweden with fibromyalgia generate the highest costs of all rheumatic diagnoses. SRA is the biggest handicap organization in Sweden and has 52,000 members and 10,000 members have fibromyalgia.[/vc_column_text][vc_empty_space][vc_column_text]

Objectives:

International work: SRA is part of the Nordic Rheumatism Council NRR, European League against Rheumatism EULAR, Lupus Europe, Ankylosing Spondylitis International Federation ASIF and Osteoporosis Europe IOF. SRA influences society and decision makers. We pursue matters in the community, provide everyday support and finance research to contribute to solving the riddle of rheumatism. The Swedish Rheumatism Association’s goal is social development that gives all people with rheumatic diseases full participation and equality in all areas of society. Important areas are care and rehabilitation, education and work .There are 200 local branches divided in to 24 districts over the whole country. Locally and regionally the districts and the local branches work to influence municipalities and county councils. Most of them have study circles about fibromyalgia, social groups, and also arrange lectures and celebrate International Fibromyalgia Awareness Day.[/vc_column_text][vc_empty_space][vc_custom_heading text=”Achievements, Activities and Events:” font_container=”tag:h3|text_align:left” use_theme_fonts=”yes”][vc_empty_space][vc_column_text]

Before 2010

<td”>Objectives<td”>DateVenue

Activity name
Fibro Life	Information about FM. Help to organize self-help groups, 7 different study-books. 4000 people involved in study-groups. 16000 people attended lectures and 500 FM-members were educated in order to became study leaders. The project was presented in EULAR and other scientific conferences.	1993-96	Sweden
Annual Scientific Day	Annual conference to the public on recent fibromyalgia research	1996-continue	Stockholm
Regionally  rehabilitation program for fibromyalgia patients. Translation of our patient brochure into seven different language Empowerment	To have rehabilitation program all over the country. Up to now there is six regions in Sweden having rehabilitation programs   To give immigrants help to profit information about fibromyalgia Self-management courses for self-help groups. Based upon Kate Lorig´s R.N Dr.PH material	2006-continue 2006 2006	Sweden
New leaflet produced “To live with fibromyalgia”	Information and guidance also to be used for self-help groups	2007	Sweden
International research conference. “Initiative Pain”	To develop the research on chronic non malignant pain from the musculoskeletal system	2007	Sweden
Research project 1.8 million SKR.”Action Against Pain”	Research project at the only hospital in Sweden for rheumatic diseases	2005-2008	Spenshult hospital
SRA  became a member of ENFA	To cooperate throw out Europe to raise awareness about fibromyalgia	2009
Workshop for health care professionals about chronic pain	To inform and improve health care professionals about fibromyalgia	2011	Sweden
“Initiative Pain” 1.5 million SKR. each year	Improving care for people with chronic pain	2009-2012	Sweden
“Initiative Pain”	Create a national web based centre for chronic pain	2009-2012	Sweden
Myopain and Leaders Against Pain meeting	Lectures of recent research, advocacy workshop	2008-2009	Washington D.C

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Expectations from the Network

By working together through ENFA and become a strong voice we want to achieve awareness about fibromyalgia and be influential at the European level in all aspects.[/vc_column_text][/vc_column][/vc_row]